Helpful Facts
Awareness
While IPF is five times more common than cystic fibrosis and Lou Gehrig's Disease (or ALS), the disease is often misdiagnosed or under-diagnosed. IPF remains virtually unknown and receives a fraction of the research funding. Raising awareness of IPF is crucial to our mission as it impacts those we care about most: IPF patients and their care partners.
Raising Awareness
Pulmonary Fibrosis Awareness Month and Pennsylvania Pulmonary Fibrosis Awareness Campaign
Many organizations and networks have worked to bring awareness to IPF and those it affects. The Pulmonary Fibrosis Foundation has designated September as Pulmonary Fibrosis Awareness Month. During this global month-long awareness campaign, the PFF provides resources aimed at educating patients, caregivers, and providers about this rare disease.
Events
IPF Community Awareness Events
