What you need to know

Education

As a patient or care partner to someone who is battling pulmonary fibrosis, it’s important to arm yourself with knowledge in order to develop well-informed treatment plans with your health-care provider. Many pulmonary fibrosis community organizations and care centers host seminars, webinars, and have developed patient education tools to help you better learn and understand your condition, ask the right questions, and be better informed on the journey ahead.

Education
What are they

Lung Diseases

Interstitial Lung Disease (ILD)

Interstitial Lung Disease (ILD)

Interstitial lung disease is the name given to a large group of diseases that inflame or scar the lungs. ILD is the umbrella term given to a whole host of lung diseases. The scarring itself is called pulmonary fibrosis.

Idiopathic Pulmonary Fibrosis

Idiopathic Pulmonary Fibrosis

Idiopathic pulmonary fibrosis (IPF) is a lung disease characterized by scarring of the lungs in which the cause is unknown.

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Pulmonary Fibrosis

Pulmonary Fibrosis

According to the American Thoracic Society, pulmonary fibrosis (PF) describes a group of lung diseases in which thickening of the walls of the air sacs (call alveoli), caused by scarring, can result in cough, shortness of breath, fatigue and low blood oxygen levels.

Seminars & Webinars

Education Events

March 2024 Quarterly Seminar -2

Quarterly Seminar Series: What is UNOS? How is it associated with lung transplantation?

Presented by: Dr. Marie Budev, DO, MPH, FCCP Cleveland Clinic Medical Director of Lung Transplant at Cleveland Clinic UNOS OPTN Lung Transplantation Committee Chair
When: Tuesday, March 19, 2024
Time: 12.00 pm-1.30 pm EST

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Pulmonary Fibrosis Podcast

Our monthly podcasts encompass a wide range of valuable topics for patients and families living with pulmonary fibrosis. Tune In and learn more from renowned pulmonary specialists in Pennsylvania!

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Wescoe Foundation for Pulmonary Fibrosis Calendar of Events

The Wescoe Foundation for Pulmonary Fibrosis, a Pennsylvania-based nonprofit focused on IPF awareness and education, hosts seminars throughout the year. 

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Pulmonary Fibrosis Foundation Webinar Series

This nationwide program allows the Pulmonary Fibrosis (PF) community to virtually learn from, connect with, and pose questions to leading pulmonary fibrosis specialists.

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Temple Health Lung Center, Interstitial Lung Disease Program

Along with an overview of Interstitial Lung Disease (ILD), including IPF, Temple lists related events and seminars online.

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UPMC Simmons Center Events & Support Group

The University of Pittsburgh, Dorothy P. and Richard P. Simmons Center for ILD at UPMC hosts a variety of events annually, including lectures, support groups, and fundraisers with options to attend events on-site or via Zoom.

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University of Pennsylvania, Perelman Center for Advanced Medicine

The advanced Interstitial Lung Disease care team at Penn Medicine offers programs and services for their patients including virtual support groups specific to pre and post lung transplantation.

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Jane and Leonard Korman Respiratory Institute at Thomas Jefferson University

The comprehensive Interstitial Lung Disease (ILD) Program at Jefferson provides patient education including webinars and support groups.

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Penn State Milton S. Hershey Medical Center

The expert lung and respiratory disease care team at Penn State Health helps you connect with other patients and carepartners through their support groups.

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Patient Education Resources

Pulmonary Fibrosis Foundation Education Resources

The Pulmonary Fibrosis Foundation (PFF) is committed to providing quality disease education to the pulmonary fibrosis (PF) community. Their education materials are also meant to provide patients with the tools necessary to live with the disease and improve their quality of life

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Our Latest Resources

PFF Care Center Network

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Listen to our IPF podcast series