Many resources exist for patients and families battling pulmonary fibrosis. From fact sheets, booklets, to patient education guides, there are many sources of information for you and your family to access as you navigate options for treatment and decisions about your care. 

The Pulmonary Fibrosis Foundation Patient Education Materials

The Pulmonary Fibrosis Foundation offers a library of patient education materials available as downloadable PDF files. Hard copies can be requested by contacting the PFF Patient Communication Center at 844.TalkPFF (844.825.5733) or

Access PFF’s patient education materials here.

American Thoracic Society Patient Education Information Series

The American Thoracic Society offers a downloadable PDF with information about idiopathic pulmonary fibrosis (IPF).

The PDF can be accessed here.

Chest Foundation Pulmonary Fibrosis Resources

Living Well Patient Guide

  • The Living Well with Pulmonary Fibrosis patient guide will introduce you to pulmonary fibrosis – its causes, symptoms, and risk factors; how it is diagnosed; and how it is treated; and how to manage the condition to minimize its impact.

Pulmonary Fibrosis Infographic

Pulmonary Fibrosis Myths Busted

CHEST Interstitial and Diffuse Lung Disease Patient Questionnaire

  • Download and complete our ILD/IPF patient questionnaire to help you initiate a conversation with your doctor about ILD/IPF.

American Lung Association Pulmonary Fibrosis Resource Library

Pulmonary Fibrosis Glossary

  • Find definitions of common pulmonary fibrosis terminology.

Pulmonary Fibrosis Downloadable Resources and Video Library

  • This interactive library includes videos, toolkits, worksheets, infographics, and other resources for pulmonary fibrosis patients and caregivers.
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