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The Pulmonary Fibrosis Podcast has expanded from 4000 downloads and 64 countries to 5000+ and 79 countries in just 3 months! Visit our podcast and learn more about pulmonary fibrosis!  

Quarterly Education Series: “What is the role UNOS and how is it involved in the lung transplant process” with Dr. Marie Budev, DO, MPH, FCCP and UNOS (United Network of Organ Sharing), OPTN (Organ Procurement and Transplant Network) Lung Transplant, Committee Chair Time well spent to learn about the role of UNOS! Tuesday, March 19,…

Co-hosted by Dr. Patricia Fogelman and Jennifer Wescoe, M.Ed., NCC (below written by Dr. Fogelman) Please enjoy our new episode of American Thoracic Society (ATS) Breathe Easy Podcast: Pulmonary-Palliative Care: We Be-LUNG Together. This is an exceptional episode, thanks to our special guest, Dr. Christopher Jones from Duke University Palliative Med!! Listen here: https://breatheeasy.transistor.fm/…/leveraging-the… Title: Leveraging the Medicare Hospice Benefit…

LETTER TO THE US CONGRESS: FOUR PILLARS FOR SUPPLEMENTAL OXYGEN REFORM – WESCOE FOUNDATION AMONG DEDICATED PATIENT-ADVOCACY ORGANIZATIONS Patients need changes to the way that they receive supplemental oxygen. The lung health community has come together in support of Four Pillars for Oxygen Reform. Approximately 50% of people living with pulmonary fibrosis (PF) who use…

RESOLUTION NO. 203 DEDICATING SEPTEMBER 17-24, 2023 “PULMONARY FIBROSIS RESEARCH AND AWARENESS WEEK” IN PENNSYLVANIA! As the year begins to creep to a close, we are looking back on the amazing impacts to the Pulmonary Fibrosis community this year! First up, we take a look back at September. We want to give A HUGE thank…

ARE YOU A VETERAN LIVING WITH INTERSTITIAL LUNG DISEASE (ILD)? How have veterans been affected by interstitial lung diseases? Tune into a new PF Podcast episode of the ‘Pulmonary Fibrosis’ podcast available this week! Dr. Mary Porteous of Penn Medical Center joins Crockett to discuss resources for Veterans living with ILD! Listen to the PF Podcast HERE!…

PFF SUMMIT 2023! As we continue to reflect on what an amazing year it has been, we take a look back to last month (November 9th to 11th) when we attended The PFF Summit in Orlando! This summit was engaging, educational, an opportunity to connect with amazing people in our community, and fun! We had…

Thank you to everyone who joined us the last Saturday October 28th, for the 18th Annual Wescoe Walk for Pulmonary Fibrosis! This walk started to honor the life of Ron Wescoe, beloved father and coach who passed from Pulmonary Fibrosis in 2004, and has grown to honor anyone who has been impacted or might be…

Patient Organization Symposium 2023 – Frankfurt, Germany  It was a tremendous opportunity to connect with incredible patient advocacy organizations around the world! We truly speak the same language, I am humbled by the tenacity, drive and sheer passion we all have for the patient and care partner voice. Thank you so much to Ms. Robina…

PCORI Annual Meeting 2023 in Washington, D.C. – “Engaging Stakeholder to Design a Curriculum for Community Education About Patient-Engaged Research” Dr. Ilene Hollin shares our impactful work at the PCORI 2023 Annual Meeting! A 2 year project that lends to educating the pulmonary fibrosis community about patient-engaged research. A pioneering and innovative project we have…