Latest News
PF Podcast: “Improving Access to Care through Technology”
PF Podcast: Improving Access to Care through Technology We have the privilege to have Eamonn Costello, Co-Founder and CEO, patientMpower as our guest on EP. 22 of Pennsylvania IPF Support Network ‘s PF Podcast . Eamonn talks about the importance of technology in managing #pulmonaryfibrosis and how we can raise more awareness regarding this very important resource. You are simply amazing,…
NEW WEB APP! Pulmonary Fibrosis support right in the palm of your hands!
Pulmonary Fibrosis support is right in the palm of your hand! A wealth of information – WEB APP!
PF Podcast: Air Pollution & ILD
PF Podcast: Air Pollution & ILD We have the honor of having Dr. Gillian Goobie, University of British Columbia and Pulmonary Fibrosis Foundation Scholar, talk about air pollution and lung functioning on our PF Podcast! Unfortunately, yet fortunately, we have this podcast as we are dealing with wildfires and its impact on our lives. Listen…
PF Podcast: “What is a Pulmonary Function Test (PFT) and what do all the numbers mean?”
PF Podcast: What is a Pulmonary Function Test (PFT) and what do all the numbers mean? This #throwbackthursday we want to highlight the Pennsylvania IPF Support Network podcast episode 22 featuring Dr. Kartik Shenoy from @TempleHealth. Thank you so much for being our guest and helping our listeners learn what a Pulmonary Function Test (PFT) is and what do…
Patient-Engaged Research: Your Experience Matter IPF Research For You, With you
Patient-Engaged Research: Your Experience Matter IPF Research For You, With you Patient-Engaged Research is essential in our present and future research. It is pioneering and important for the #pulmonaryfibrosis community. Wescoe Foundation is partnering with Temple University College of Public Health on this project funded by Patient-Centered Outcomes Research Institute – PCORI. We are moving…
ATS 2023 Conference: Surrounded by tremendous, dedicate people in the PF-ILD World
ATS 2023 Conference: Surrounded by tremendous, dedicated people in the PF-ILD World This past May we had the honor and privilege to attend the #ATS2023 Conference in Washington DC. What a tremendous learning experience and inspiration, surrounded by incredible, dedicated people in the PF-ILD world.
ATS 2023 Conference! Meet the Expert: “It takes a Village: Integrating ILD Support Groups in Community Medical Centers”
ATS2023 Conference! Meet the Expert: “It takes a Village: Integrating ILD Support Groups in Community Medical Centers” It was an honor to co-present “Meet the Expert: It takes a Village: Integrating ILD Support Groups in Community Medical Centers” at #ATS2023 with Dr. Doug Corwin from St. Luke’s University Health Network Collaborative partnerships are key in…
COMPANION Study: Let’s progress science together!
COMPANION STUDY (Vicore Pharma): Let’s progress science together! There is a research opportunity for a new therapy app for people living with PF. The app is intended to reduce anxiety and improve mental health for all people living with PF. To succeed with the study, I hope you will consider signing up for the 9-week…
PF Podcast 3000+ DOWNLOADS & REACHING OVER 59 Countries!
WOW! We are jumping for joy at the news that the PA IPF Podcast has been downloaded over 3000 times across 59 countries! We are so happy to be spreading the word about IPF internationally and providing resources to those faced with this disease. Want to check out the podcast for yourself? Visit www.paipfsupportnetwork.org to…
