Helpful Facts
Care and Resources
When you or your loved one receive a pulmonary fibrosis diagnosis, it can be a confusing and overwhelming time. Given the rarity of the disease and the unknowns, finding appropriate care and resources can be difficult.
The following includes further information on providers in Pennsylvania as well as helpful resources about the various treatment options your doctor may speak to you about.
Find the Appropriate Care
Pulmonary Fibrosis Foundation Care Center Network
The Pulmonary Fibrosis Foundation (PFF) has assembled a lists of medical centers with specific expertise in the treatment of pulmonary fibrosis (PF). As part of that commitment, the Foundation has worked with the medical community to establish the PFF Care Center Network. This program allows people with PF to find experienced PF medical professionals and additional support services.
PFF Care Center Network
- Address: 685 Delaware Ave Fountain Hill, PA 18015
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Contact:
- Name: Dr. Douglas Corwin, MD
- Phone: 484-526-3890
- Website: https://www.slhn.org/pulmonary-care
- Address: 3401 North Broad Street 785, Parkinson Pavilion, Philadelphia, PA 19140
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Contact:
- Phone: 800-836-7536
- Website: https://www.templehealth.org/services/lung/patient-care/programs/pulmonology
- Address: 3600 Spruce Street 831 Gates Bldg., Philadelphia, PA 19104
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Contact:
- Phone: 800-789-7366
- Website: https://www.pennmedicine.org/for-patients-and-visitors/find-a-program-or-service/harron-lung-center/interstitial-lung-disease-ild-and-sarcoidosis-program
- Address: 834 Walnut Street, Suite 650, Philadelphia, PA 19107
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Contact:
- Phone: 215-955-6591
- Website: https://hospitals.jefferson.edu/departments-and-services/jane-and-leonard-korman-respiratory-institute/
- Address: 500 University Drive, Hershey, PA 17033
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Contact:
- Phone: 717-531-6525
- Website: https://hmc.pennstatehealth.org/pulmonary
- Address: 3459 Fifth Avenue, UPMC Montefiore NW 628, Pittsburgh, PA
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Contact:
- Phone: 412-802-3275
- Website: https://www.upmc.com/services/pulmonology/our-services/interstitial-lung-disease
Oxygen, Transplant, and Clinical Trials
Information and Resources
Oxygen Therapy Information and Resources
Oxygen therapy or supplemental oxygen is often recommended by medical providers in the treatment of pulmonary fibrosis. Each patient’s needs are unique—some require oxygen all day long, others may only need it at certain times of the day or when exercising. According to the Pulmonary Fibrosis Foundation, oxygen therapy is prescribed when oxygen levels go below 88%. As with any of your treatment options, you should consult your health care provider. Below are some helpful resources about oxygen therapy:
Lung Transplant Information
At some point during your treatment and disease progression, your health care provider may discuss with you lung transplantation. Lung transplant can extend life expectancy and lead to better quality of life. However, it is a major surgery so will likely not be the first option discussed during your treatment. Depending on your prognosis and where you are at in your disease progression, the following are some helpful resources that may aid your conversation with your health care provider about lung transplantation:
Clinical Trial Information
Clinical trials are performed to test the safety and effectiveness of experimental treatments for disease treatment. Many organizations offer information on what clinical trials entail as well as information on trials you may wish to become involved in. As always, consult your physician to see if a clinical trial is right for you.
Further information and resources from the Pulmonary Fibrosis Foundation are below:
Organizations
Other Helpful Resources
Resources
For Patients and Providers
The Pulmonary Fibrosis Foundation Health Provider Resources
Many resources exist on the Pulmonary Fibrosis Foundation’s Health Provider Resources page that link health-care professionals to important, up-to-date information, grants, guides, fact sheets, and more. Additional information from the PFF can be found on the Medical Community Research and Resources page.
Patient Guide
Download our patient guide.
Provider Checklist
Download our provider checklist.
Patient Checklist
Download our patient checklist.
Clinical Trials
A list of ongoing clinical trials about IPF can be found on clinicaltrials.gov.
