Groups Located in PA
IPF Support Groups
Support groups can offer additional care and connection with those who share your journey and who can relate to what you’re going through. The following includes IPF support groups and networks located in Pennsylvania. This list, including a list of support groups across the nation, can be found on the Pulmonary Fibrosis Foundation website. For more information, please contact: Jennifer Wescoe at 484-553-6340 or jennifer@wescoe.org
*Please note that all support groups are held virtually.
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Contact:
- Name: Jennifer H. Wescoe-Singley, M.Ed., NCC
- Phone: 484-553-6340
- Email: jennifer@wescoe.org
- Meeting Times:
Every 4th Tuesday of each month 12-1 pm
Every 1st Friday of each month 10-11 am
Join Zoom (For 4th Tuesday) | Join Zoom (For 1st Friday) | Meeting Dates (Friday) | Meeting Dates (Tuesdays)
- Address: GO TO MAIN ENTRANCE
Abigail Community Room (Valet Parking)
100 N. Academy Ave., Danville, PA 17822
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Contact:
- Name: Jennifer H. Wescoe-Singley, M.Ed., NCC
- Phone: 484-553-6340
- Email: jennifer@wescoe.org
- Meeting Times: Every 1st Thursday of each month virtually from 2.30-3.30 pm
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Contact:
- Name: Jennifer H. Wescoe-Singley, M.Ed., NCC
- Phone: 484.553.6340
- Email: jennifer@wescoe.org
- Meeting Times: Every 4th Friday of each month from 1-2 pm
- Address: 834 Walnut Street, Suite 650, Philadelphia, PA 19107
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Contact:
- Name: Emily Littman, PA-C
- Phone: 215-955-5161
- Email: emily.littman@jefferson.edu
- Meeting Times: Meeting times: Every 3rd Thursday of the month from 12:30-2 pm
- Address: Kasych Pavilion (to the right of hospital entrance) Free Valet Parking
1200 Cedar Crest Blvd., Allentown, PA 18103 -
Contact:
- Name: Jennifer Wescoe
- Phone: 484-553-6340
- Meeting Times: Every 3rd Tuesday of each month virtually from 2-3 pm
- Address: Penn State Hershey Medical Center - University Fitness Center
30 Conference Dr., Hershey, PA 17033 -
Contact:
- Name: Timothy Sheehan
- Phone: 717-531-2925
- Email: tsheehan@pennstatehealth.psu.edu
- Meeting Times: The last Monday of every month virtually from 5:30 - 7:00PM EST
- Address: +1 929 205 6099 US (New York)
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Contact:
- Name: Jennifer H. Wescoe-Singley, M.Ed., NCC
- Phone: 484.553.6340
- Email: jennifer@wescoe.org
- Meeting Times: Every 2nd Friday of each month from 1-2 pm
Join Zoom | Meeting Dates
Meeting ID: 845 4067 7243
Passcode: 119334
- Address: Priscilla Payne Hurd Education Center, Rm 113
801 Ostrum St., Bethlehem, PA 18015 -
Contact:
- Name: Jennifer H. Wescoe-Singley, M.Ed., NCC
- Phone: 484-553-6340
- Email: jennifer@wescoe.org
- Meeting Times: Every 4th Tuesday of each month virtually from 2-3 pm
- Address: Medical Office Building Ground Floor (Entrance at Fitness Center)
1700 St Luke’s Blvd., Easton, PA 18045 -
Contact:
- Name: Jennifer Wescoe
- Phone: 484-553-6340
- Meeting Times: Every 2nd Wednesday of each month virtually from 2-3 pm
- Address: 3401 N. Broad Street, 5th Floor, Zone D (Ambulatory Care Center)
Philadelphia, PA 18140 -
Contact:
- Name: Michelle Vega-Olivo, MSN, CRNP, FNP-BC
- Phone: 215-707-9574
- Email: michelle.vega@tuhs.temple.edu
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Contact:
- Name: Jennifer H. Wescoe-Singley, M.Ed., NCC
- Phone: 484-553-6340
- Email: jennifer@wescoe.org
- Meeting Times: Every 3 months on the Second Tuesday (3/12, 6/11, 9/10 and 12/10) from 2-3 pm
- Address: Smilow Center for Translational Research, Room 01-102, 3400 Civic Center Blvd., Philadelphia, PA 19104
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Contact:
- Name: Jamie Lederer, ILD Nurse Practitioner
- Phone: 215-615-7242
- Email: jamie.lederer@uphs.upenn.edu
- Meeting Times: Specific Fridays of each month virtually from 2-3:30 pm
To obtain Zoom link please email: ILDSupportGroup@pennmedicine.upenn.edu
- Address: UPMC Presbyterian Hospital, 3459 Fifth Avenue, Pittsburgh, PA 15213
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Contact:
- Name: Stacie Truszkowski
- Phone: 412-624-7225
- Email: truszkowskisl@upmc.edu
- Meeting Times: Stay Tuned for More Details
- Address: Wescoe Foundation
229 N. Main Street
Coopersburg, PA 18036 -
Contact:
- Name: Jennifer H. Wescoe-Singley, M.Ed., NCC
- Phone: 484-553-6340
- Email: jennifer@wescoe.org
- Meeting Times: Every 2nd Thursday of each month virtually from 5-6 pm
- Address: Wellspan Health, Building #2
12 St. Paul’s Dr., Chambersburg, PA 17201 -
Contact:
- Name: Jennifer H. Wescoe-Singley, M.Ed., NCC
- Phone: 484.553.6340
- Email: jennifer@wescoe.org
- Meeting Times: Every 3rd Monday of each month virtually from 5-6 pm
- Address: 2350 Freedom Way #202
York, PA 17402 -
Contact:
- Name: Virtual Contact - Jennifer H. Wescoe-Singley, M.Ed., NCC
- Phone: 484-553-6340
- Email: jennifer@wescoe.org
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Contact:
- Name: In Person Contact - Lorraine Snyder RRT, AE-C
- Phone: 717-741-8175
- Email: lsnyder3@wellspan.org
- Meeting Times: 1st Wednesday of each month virtually from 5-6 pm
- Address: Wescoe Foundation
229 N. Main Street
Coopersburg, PA 18036 -
Contact:
- Name: Jennifer H. Wescoe-Singley, M.Ed., NCC
- Phone: 484-553-6340
- Email: jennifer@wescoe.org
- Meeting Times: Every 1st Wednesday of each month virtually from 1-2 pm
All you need to know about
IPF Support Groups
Benefits of Attending a Support Group
Studies suggest that participation in support groups helps patients (and their caregivers) feel less isolated and helps to improve the outlook on their condition. Studies also found it is useful to talk to other people with the same condition. In general, people with IPF and their family members, express the need for greater support, as well as receiving information and education to manage the disease.
In addition to helping put you at ease, talking with others who are in the same situation can help you to learn new information or ask questions you hadn’t thought about.
Further reading: Top Four Reasons to Attend a Support Group from Temple Health
What to Expect When Attending a Support Group
Support groups are an excellent way to hear directly from and talk to patients and caregivers who are in your shoes. Support groups offer a venue to openly discuss practical questions and share information, especially on topics of particular interest to you: how fellow patients coped with their diagnosis, the research they’ve done, treatment options they are exploring, or are currently experiencing.
Support groups are typically attended by patients, caregivers, and care partners, as well as members of the medical community. They can be larger and more structured, or smaller with more open-ended discussion.
Online Support Groups
The benefits of connecting with others online can offer real-time access to information and support. Depending on the progression of your disease, leaving your home may be difficult. Connecting online allows you to get the support you need from the comfort of home. They also give you the option of participating more anonymously should that be of interest to you.
