Groups Located in PA

IPF Support Groups

Support groups can offer additional care and connection with those who share your journey and who can relate to what you’re going through. The following includes IPF support groups and networks located in Pennsylvania. This list, including a list of support groups across the nation, can be found on the Pulmonary Fibrosis Foundation website.  For more information, please contact: Jennifer Wescoe at 484-553-6340 or info@paipfsupportnetwork.org.

*Please note that all support groups are held virtually.

  • Address: Valley Medical Bilding, General Surgery Conference Room
    1000 E. Mountain Blvd., Wilkes Barre, PA 18711
  • Contact:
  • Meeting Times: Every 4th Wednesday of each month virtually from 2:30 - 3:30 pm
  • Join Zoom | Meeting Dates

  • Address: GO TO MAIN ENTRANCE
    Abigail Community Room (Valet Parking)
    100 N. Academy Ave., Danville, PA 17822
  • Contact:
  • Meeting Times: Every 1st Thursday of each month virtually from 2.30-3.30 pm
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  • Address: Kasych Pavilion (to the right of hospital entrance) Free Valet Parking
    1200 Cedar Crest Blvd., Allentown, PA 18103
  • Contact:
  • Meeting Times: Every 3rd Tuesday of each month virtually from 2-3 pm
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  • Address: Penn State Hershey Medical Center - University Fitness Center
    30 Conference Dr., Hershey, PA 17033
  • Contact:
  • Meeting Times: The last Monday of every month virtually from 5:30 - 7:00PM EST
  • Meeting Dates

  • Address: +1 929 205 6099 US (New York)
  • Contact:
  • Meeting Times: Every 2nd Friday of each month from 1-2 pm
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    Meeting ID: 854 1908 1321
    Passcode: 020414

  • Address: Priscilla Payne Hurd Education Center, Rm 113
    801 Ostrum St., Bethlehem, PA 18015
  • Contact:
  • Meeting Times: Every 4th Tuesday of each month virtually from 2-3 pm
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  • Address: Medical Office Building Ground Floor (Entrance at Fitness Center)
    1700 St Luke’s Blvd., Easton, PA 18045
  • Contact:
  • Meeting Times: Every 2nd Wednesday of each month virtually from 2-3 pm
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  • Address: 3401 N. Broad Street, 5th Floor, Zone D (Ambulatory Care Center)
    Philadelphia, PA 18140
  • Contact:
  • Contact:
  • Meeting Times: Every 3 months on the Second Tuesday (3/12, 6/11, 9/10 and 12/10) from 2-3 pm
  • Address: UPMC Presbyterian Hospital, 3459 Fifth Avenue, Pittsburgh, PA 15213
  • Contact:
  • Meeting Times: Stay Tuned for More Details
  • Address: Wescoe Foundation
    229 N. Main Street
    Coopersburg, PA 18036
  • Contact:
  • Meeting Times: Every 2nd Thursday of each month virtually from 5-6 pm
  • Join Zoom | Meeting Dates

  • Address: Wellspan Health, Building #2
    12 St. Paul’s Dr., Chambersburg, PA 17201
  • Contact:
  • Meeting Times: Every 3rd Monday of each month virtually from 5-6 pm
  • Join ZoomMeeting Dates

All you need to know about

IPF Support Groups

Benefits of Attending a Support Group

Studies suggest that participation in support groups helps patients (and their caregivers) feel less isolated and helps to improve the outlook on their condition. Studies also found it is useful to talk to other people with the same condition. In general, people with IPF and their family members, express the need for greater support, as well as receiving information and education to manage the disease.

In addition to helping put you at ease, talking with others who are in the same situation can help you to learn new information or ask questions you hadn’t thought about.

Further reading: Top Four Reasons to Attend a Support Group from Temple Health

What to Expect When Attending a Support Group

Support groups are an excellent way to hear directly from and talk to patients and caregivers who are in your shoes. Support groups offer a venue to openly discuss practical questions and share information, especially on topics of particular interest to you: how fellow patients coped with their diagnosis, the research they’ve done, treatment options they are exploring, or are currently experiencing.

Support groups are typically attended by patients, caregivers, and care partners, as well as members of the medical community. They can be larger and more structured, or smaller with more open-ended discussion.

Online Support Groups

The benefits of connecting with others online can offer real-time access to information and support. Depending on the progression of your disease, leaving your home may be difficult. Connecting online allows you to get the support you need from the comfort of home. They also give you the option of participating more anonymously should that be of interest to you.

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Listen to our IPF podcast series